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Selasa, 12 April 2016

My Wife and our Life with Cancer sorry for the lengthy post


So over all my Wife has been doing well, she has had a few set backs, last Thursday she was physically sick, puking and had a bad head ache, she slept most of the day and was feeling better Friday. I am pretty sure her sickness was due to too much medication, she takes 20mgs of Morphine twice per day as well as 10mgs of Oxycodone twice per day, on top of that she took a 10mg Valium in hopes it would help relax her leg and let her sleep, I think it was just too much for her system.

Her left leg has been really bothering her, the most likely cause is fluid build up (there is a medical term for this, and it is quite common, but since I am writing this offline, I can’t look it up),anyway her leg has been bothering her for almost 2 weeks, I did take her to the Doctor and he gave her a couple Cortisone needles with anaesthetics in her leg, it helped her a little bit and on Tuesday she goes for an ex-ray on her leg, just to be sure it is not cancer.

As for her Lung Cancer, so far it is not bothering her, she still mostly just uses her oxygen at night while sleeping, she rests a lot during the day but says her lungs are not hurting and she has no shortness of breath. She has been off Chemo for 5 months now and seems to be doing well, her CT-Scan happens February 4th , we should know the results by the 6th the latest, I am praying that it hasn’t spread further and hope that the Holistic treatments are working to shrink the tumors.

She has remained in good spirits, which is important, she is a strong willed woman who won’t give up, I am pretty sure the main reason she pulled through when the Doctors said notify the family is quite simply her Son “Hammy” , he is her entire world, she was born to be a Mom and a great Mother she is, she loves him more than life itself and that is what I believe keeps her going.

Yes I am sure she loves me as well, but it’s not the same, nor could it ever be, the Bond between a Mother and child is extremely strong and endures through time, and that bonded love is very different than the love and bonds of a spouse/partner, just as I love her and our Son on different levels, it can never be the same, but despite that difference, I’d do absolutely anything for both of them without question.

I’d do anything to have my Wife live to grow old with me, to be there when our son graduates, to be there when he becomes a Cop, to be there at his wedding, to be there to see our future grand children and to help me spoil them rotten, I’d give my very soul if it meant she lives to be old, as it is, none of this will probably come to fruition with her at my side so all I can do is cherish each day that I have with her, to constantly let her know that I LOVE her and will be okay and that I can raise our son to be the man she always dreamed he’d be, all I can do is be there in the here and now with her, there are no more future plans together, it is all down to just one simple day at a time, and I’ll take that if it means she can be here at my side just a while longer.

February 14th will be our 18th Anniversary, I am quite confident that we BOTH will be here to celebrate that milestone together, this year I can’t afford much in the way of a lavish gift, but I do have my Great Grand Mother’s Ruby and Emerald ring, I am taking it to a Jeweler to see if maybe I can do a partial trade on a small diamond ring or maybe just maybe have it turned into a nice necklace for her, I wish I could do more for her but the damn furnace just took too much even on payments, it’s a formidable bill.

I will make her her absolute favorite dinner and our son has volunteered to be our waiter , he will help make the meal too, then her and I will have a candle light dinner after which I will get down on my knee , giver her the gift and 18 red roses and tell her EXACTLY how much I love her, how much she means to me, how happy she has made me all these years and let her know that I have no regrets.

I honestly don’t know how many more Anniversaries I will have with her so I cherish the one coming up now, that’s pretty much my reality now…. just one day at a time, make no plans for the future and hope and pray for the best, I don’t really like the uncertainty of one day at a time,but really….what choice do I really have?

The only regret I have is that Hammy has witnessed the pain and suffering Cancer has caused his Mother, that I couldn’t protect him from seeing his Mom at her lowest point, that last spring I had to sit down on the back steps with him and tell him that his Mother may not survive the night, that she may be called to God’s side in Heaven….. I pray for every person reading this, that none of you will ever have to have THAT talk with a child, it is a very gut wrenching soul searing hard thing to do, to look a child in the eyes and tell them that their Mother/Father/Parent may die. That conversation damned near killed me, but it had to be done, he had and still has the right to know the truth and the facts, to not tell him would be to lose his trust completely, to not tell him would be an outright lie even by omission, to not tell him could have made him resentful, it could and probably would have made him HATE for the first time in his life, and could have led to problems with drugs or alcohol. As hard as it was, I had that very conversation with him.

Like me, Our Son is aware of just how serious this could get, it has changed all our lives, not just my wife’s, Cancer is like that, it infects and permeates around and within everyone who is involved with the person who has the actual disease, it takes over everyone’s lives not just the Patient, all you can do is go on living your lives as best as you can knowing the Cancer is still there and probably always will be, you try and work around it but you can never truly avoid it, it’s always there, just silently watching and waiting, you try to remain positive and even ignore the cancer, still it’s in your worst nightmares,it’s in the eyes of your child when he sees his Mom is not feeling well, it’s inside your head as you change the oxygen tanks and help your wife clean herself, it’s always there, even on good days when your wife is happy and bright eyed and has energy to spare, a sudden coughing spell and the blood on her lips Snap you back to the stark reality of Cancer, like an insidious demon from hell it latches onto entire families and slowly, ever so slowly strangles the life out of everyone.

You beg and plead with your God not to take her away from you and the boy, you bargain you say and do anything to buy more time, just one more Day please please please, just one more day, you fall to your knees and beg for strength and mercy to carry on to be strong for your wife, to be strong for your son, you give false hope, not meaning to or wanting to, you tell her that it’s going to be okay, she just has to stay strong and fight the Cancer, that she can do this and that you will be there every step of the way fighting alongside her, you tell her no matter what happens that you will never give up turn away or stop loving her, you bare your very soul for God and the world to see, your heart is permanently tattooed on your shirt sleeve, you are exposed to mental and emotional pain, you weep when someone you don’t even know dies of cancer, you rejoice when someone you don’t even know survives, you spend hundreds of hours researching alternative medicines and therapies that you might try with your wife, you network like crazy searching out those who have fought or are fighting for their lives against this evil vile disease, you do this without ever being asked, you do it out of love and fear, the love you have and want to continue to have with your wife, the fear , the constant fear of losing your soul mate, losing the only woman you have ever truly loved, fear of becoming a single parent and having to pick up the shattered life of a young son and carry on. Through all this turmoil, you learn quickly to appreciate each day that you have as a complete family,you are grateful and thankful each morning that you wake up and she is there at your side, Tomorrows never come when your living with cancer,today is all that matters.

I’ll stop now sorry for the long post, thanks for your time, Remember folks: express your love often,never take tomorrow for granted, and be kind to others.

Butch.
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Sabtu, 26 Maret 2016

I am Broken now … long post I’m sorry


We don’t know how much time we have left, my Wife and I have been talking a lot, we talk about Heaven and how nice it must be, how there is no pain suffering or sorrow in Heaven, we talked about how time has no meaning in Heaven, that she might be there talking with her brother Brian and look up to see me walking up over the horizon, she would ask me “What are you doing here”? And I would reply, “my Darling, 40 years have passed” , and she would think only a moment had passed since her arrival. Then we’d both turn to see our son Hammy walking across the horizon and he would say Mom, Dad, 80 years have passed in but a moments time in Heaven, and we would ALL be together again for all Eternity.

We have been talking about our son and his future, I told her that no matter what happens Hammy and I will be alright and that I will continue to raise him up to be the man she had hoped and dreamed he’d become, I told her she need not worry about us that we’d be okay.

We have been working on her WILL and getting it all in proper order just the way she wants things to be, and this coming week I will drop it off at the lawyers to have it finalized, we are going to the city Tuesday to put me on her bank accounts, just in case, so that I will have access to them should something happen. We are getting everything in order just in case, it is not easy to do all this as it makes the inevitable a stark reality for both her and I.

We have been spending time as a family, Hammy her and I, reassuring her that she is so very loved, and reassuring Hammy that no matter what his Mom will ALWAYS be at his side, he is in pretty rough shape, I have to go to his school Monday and tell them what is happening here at home and to set up counseling for him there, then I have to set up an appointment with his counselor in the city, he hasn’t had to see her since last fall, he needs her now.

I’ve been grieving, I know it may seem odd to you that I would grieve while my wife is still with us, but I can’t help it I LOVE her so very much and the thought of losing her is just too much for me to bare, I’ve had 17 wonderful beautiful years of pure LOVE, JOY and HAPPINESS with her, I will cherish those memories for ever, we have some fantastic memories her and I and we have been talking about them.

Hammy has been rocked to his very soul, the thought of losing his Mother has him at his breaking point, today(Monday) I went with him to his school and had a very tearful conversation with his principle and teachers and asked that they keep an eye on him and let me know if he acts out breaks down or tries to hang himself on the swing set (again) , The school called in a counselor for him and she will see him twice per week, Palliative Care from the Cancer center in Regina is going to send out a music therapist in the evenings to help Hammy, and I called his counselor at Child and Youth services to get him back in there.

I hold Hammy often, just a big bear hug and a kiss on the top of his head while whispering to him just how proud his Mother is of him, I tell him how much she loves him and wants him to continue to grow into a fine young man, I whisper to him just how much I love him and that no matter what he will stay living with me, I tell him how proud of him I am and that yes it will hurt when Mom goes to God, but we will get through it together, I told him we would stay out here in the little village at least until he is a grown man and busy with his career, I keep reassuring him that we will be alright.

Over the weekend I got all the funeral arrangements lined up, the village church waived it’s fees so the service can be held there and the town hall waived it’s fees so the wake can be held there, it was very nice of them to do this for us, words can not express my gratitude, my neighbours has been clearing out my walkway and drive way with their snow blowers keeping everything open in case an Ambulance needs to be called, the village has a 14 person First Responder unit as well so when and if an Ambulance is called the village First Responders would get here first, assess the situation and decide whether the air ambulance is needed or a regular ground ambulance.

The Village has been so very kind and helpful, I can never repay them except by paying it forward, I pick up my wife’s will from the town office tomorrow morning, all 3 Commissioners are signing it for my wife as witnesses, then it’s off to the city to have our Lawyer make it iron clad, and to put my name on my wife’s bank accounts, we are getting everything done now while she is able, she is going down hill really fast, once again she has to sleep on the main floor of the house, I too will sleep in the living room so she is not alone, this morning at 7 am I had to give her 20 mg’s of Morphine, she slept until 10 am , I bathed her and helped her in the washroom then gave her another 20 mgs of Morphine, she drinks Ensure and Boost more than she eats now, she is starting to feel more pain as her lungs begin to collapse, I am not sure how much longer she will be with us, I am not sure how much longer I can bare to see her hurt and struggle, I’m trying my very best to keep her comfortable, she wants to pass at home and I am doing everything I can to see that it happens but if the pain becomes more than the Morphine can manage she may have to go to palliative care, it’s so hard to hear her struggling for breath, it’s not like on tv and in the movies where they just close their eyes and pass peacefully, it is nothing like that at all, the truth is she feels pain fear hurt , the truth is she gasps and struggles for air even on the oxygen machine, the truth is she cries in her drug induced sleep, the truth is she is trying so hard to hang on and the truth is she doesn’t want to die, the truth is she knows she is going to be with God soon, the truth is her heart is breaking because she wont be here for Hammy and I .

The truth is all this is KILLING me, my very soul longs to go with her but the reality is I can’t I need to be here for Hammy, I have hundreds upon hundreds of photos of my wife and of our life together and of our little family, I have so many memories and I try so hard to focus on them but when I do I just break down.

I look at her now and I don’t see a weak frail sick person, I see my Beautiful Darling Angel as Beautiful and as perfect as ever, I see her innocence while she sleeps, I see perfection personified, I see an Angel .

Nothing has been left unsaid between us, she knows she is truly and honestly loved, she knows that Hammy and I will be alright, she knows that Hammy and I will live our lives in a way that will make her proud and honour her.

I will never love again, how could I for she is my soul mate, I am so lucky and blessed to have found my soul mate, most people don’t get to, I could never love another person as much as I love my wife, I will eventually die myself and my life will have been truly blessed and fulfilled , I have a love that is only heard of in fairy tales, I know this and I cherish every moment and every memory we have and have made together, we crammed an entire life time of love laughter and adventures into 17 short years.

So yes I grieve while my wife is still with us, and I will grieve even worse when she is gone, I grieve because I will never again feel her soft loving touch, I grieve because I will never again be able to hold her in my arms and whisper sweet nothings to her, I grieve because I will never see her beautiful sweet smile again, she doesn’t smile often now, I grieve because this is extremely hard on Hammy, I weep for him as he is his Mother’s boy, I grieve because God gave me a true angel then decided to take her away from me again, I grieve because all our hopes and dreams are gone. I grieve because it is killing me to see her suffer and slowly waste away.

I am losing so much more than a wife, I am losing my entire world, this old house is just that an old house without her, my wife makes this old house a home, it doesn’t feel much like a home now, just a place we go to sleep and stay, the warm welcoming feel of the old house is gone now it’s grows a bit colder and a bit more stale and heavy as each day passes.

I am broken now and always will be

Butch
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Selasa, 15 Maret 2016

Sorry Unicef and other Charities my charity stays local


I know this post will probably upset some folks,but just read the WHOLE thing before reacting.

For decades Charities like Unicef and Christian Childrens Funds and a thousand more charities have been shlepping photos of hungry children in foreign countries (usually Africa,Uganda,Somalia etc.)and hey I am all for saving children, as a parent the pictures really do tug at my heart, almost every charity in North America is geared towards feeding, housing, and schools in foreign countries..... BUT!!! wait.... What about the millions of hungry children and families living so far below the "government standard poverty line" right here in our own back yards? ( North America ....USA & Canada) where is all the charities for our own folks? why are they not on tv and in the news print ? why are all the Celebrities quick to jump on the foreign aid band wagon yet turn their backs on their own (North Americans?)

Why in 2 super power countries (USA and Canada) are there millions of children that are going hungry? why are there so many children and families in North America who are homeless? why are there millions of children in North America who are NOT going to have any sort of Christmas? WHY is NO ONE doing anything about this?

Yes we have the Salvation Army and YMCA/YWCA, and Food Banks, they can only do so much with limited resources, how many of you donate to any of these ? be it money, food, clothing,time? ...thought so. Unicef and the big business charities funnel your money to other countries, and how much of that money is actually going where it is needed? yet no one funnels money time and resources into helping the less fortunate on a local level.....why is that?

Just think about that a moment... chances are you DO know someone who is struggling to make ends meet, goes hungry or is nearly homeless, could be a friend, co worker, classmate,neighbor,relative,maybe even YOU! most people in need wont admit it to friends or family.

so what can you do? what DO you do? what will you do?

I understand the children in Africa and other countries need help, but do the math here, millions if not billions of dollars are going out every year to foreign aid from more than just North America, every developed country or most of them send aid to these countries,makes me seriously question just where the HELL is all that money going?? these charities collect more money on a daily basis than any person in North America can make in a year!! so where does the money go? why is Africa still poor? they should be living like kings with all the charity money they get!

yet less than a tenth of the sum total of foreign aid money gets donated towards our local charities, even less to our food banks and even less still to help fight homelessness in North America. think about that.

Think about that as you sit down with your friends and family this Christmas, how many North Americans will NOT be having Christmas.

Butch
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